RDDC Home Page
Description: Arterial Tortuosity Syndrome (ATS) nonprofit/patient group.
rare (817) ats (415) artery (112) rare disease (100) rare syndrome (2) arterial tortuosity syndrome tortuosity tortuous arteries genetic syndrome
About ATOF and It’s Leadership ATS and Related Education ATS Patient Support and Education ATS Research and News The CONECT Project and Friends Facebook Welcome to the home of arterial tortuosity syndrome and CONECT. Please take a look around and make sure to ask questions!
“Our mission is a world wide initiative to find a cure for arterial tortuosity syndrome, by supporting research, education, awareness, and families.”
A Twist of Fate-ATS (ATOF) was founded to find a “cure” for arterial tortuosity syndrome (ATS). Andrea Tayl0r’s youngest son was diagnosed, with ATS, at the age of two. Her son has had 3 heart catherizations, several balloons, three stent stents in the pulmonary arteries, and open chested surgery to reconstruct his pulmonary artery. He is the first ATS patient in the United States to have had this procedure done and the first patient in the U.S. to have a proceedure called corneal crosslinking, to help stop
RDDC Home Page