Description: Improving the lives of children and families affected by rare fatal neurological disorders.
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B Brave Foundation supports families so they can care for their child without added financial stress and uncertainty. We provide tools and tactics to improve communication between families and medical providers. We work to empower doctors, nurses, therapists and child life specialists with tools to better serve our families, bridging gaps in a fragmented healthcare system that is not designed to manage children with complex medical needs. We equip parents to be resilient during times of unimaginable sorrow.
B Brave Foundation is a 501(c)(3) that supports children, families and healthcare providers. B Brave was born out of love, and inspired by the life of Joey Scaparotti, who created the spark for an organization dedicated to improving the lives of children affected by rare incurable neurological disorders.