Description: Software for rare disease patient groups
support (9788) drug development (120) researchers (104) rare disease (102) genetic disorders (16) comend (4) orphan diseases (4) patient advocacy groups (4) librarey (3) disability resource guide (3)
Tech for patient groups to drive research. Advances in rare disease treatments rely on the work of patient groups. From growing organizations to educating stakeholders, we’re building the tools to help.
Co-designed with these organizations so far
We're working with the community to build tools that support your patient group from kitchen table to clinical trials