Helen: The Journal of Human Exceptionality
Description: Parent Project Muscular Dystrophy (PPMD) fights to end Duchenne muscular dystrophy. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Donate to PPMD and directly impact our mission to end Duchenne, by helping us accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Stay up-to-date on simple actions you can take to help ensure that the Duchenne community has a voice in both federal and local politics, and in conversations with regulatory agencies that directly impact everyone living with Duchenne.
When you join The Duchenne Registry, you are strengthening the power of a 10-year-old network of patient-powered data that will be used to improve care for people living with Duchenne and increase our understanding of the disorder.
Helen: The Journal of Human Exceptionality