Description: Individuals and institutions committed to improving healthcare services in rare hematological diseases
Example domain paragraphs
ERN-EuroBloodNet Who we are? Objectives Governance Transversal fields of action Subnetworks Disease cards European Reference Networks ERN-EuroBloodNet Deliverables ERN-EuroBloodNet Acknowledgement Membership Membership criteria Members and representatives Affiliated Partners Supporting Partners Search experts Repository of experts' Handbooks Cross border health Best practices Guidelines and other CDMTs Search Guidelines and other CDMTs External Quality Assessment CPGs and other CDMTs written by ERN-EuroBloo
The Viewpoint summarizes the role of ERN-EuroBloodNet to improve the overall approach and management of Sickle cell disease patients in EU through key actions developed by the network. The manuscript is the result of the joint work within 12 EU Member States, a total of 26 ERN-EuroBloodNet health professionals and patients representatives have contributed.
The Clinical Patient Management System (CPMS) is currently used by 122 ERN-EuroBloodNet users across 18 EU countries . 52 Panels have been opened so far in the platform from which 22 are closed , and 30 are still open for additional contributions. If you want to be part of this project, we recommend you to have a look at our website section where dedicated guides have been recently updated!
European Conference on Rare Diseases - ECRD2024