Description: Providing a central access point for information on rare disease patients’ registries to all stakeholders
spider (285) cerebral palsy (261) rare diseases (81) data repository (10) patient data (8) congenital anomalies (5) rd platform (2) rd registry (2) erdri (2)
European network of population-based registries for the epidemiological surveillance of congenital anomalies
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Overview of the EUROCAT network, its organisation and committees