hemophilia.org - National Bleeding Disorders Foundation, formerly NHF | NBDF

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Description: NBDF is committed to curing blood & bleeding disorders, preventing complications, and empowering individuals & families through research, education & advocacy.

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Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys offering researchers a 360-degree view of what it is like to live with a bleeding disorder. Open to all persons affected by an inherited bleeding disorder as well as their non-affected family members (parents, spouses, grandparents, and siblings), it provides all the opportunity to participate in patient-reported outcomes research.

Connect with other families affected by bleeding disorders in your area through NHF's chapter network.

“NHF strengthens our community and gives us a sense that we belong to something bigger than ourselves—that we’re all in this together. That’s an amazing feeling.” — Monica, Community Member

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