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Description: We Will Rise This week has been challenging for me. I have been spiking 101 fevers daily, despite having been on antibiotics that helped until I completed the … This is What Living With a Rare Disease is Like You awake in the middle of the night. You are nauseated and perspiring with your head

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Home Contact About Blog Resources Ehlers Danlos Syndrome Mast Cell Disease Dysautonomia IV Therapies Group Instagram Home Contact About Blog Resources Ehlers Danlos Syndrome Mast Cell Disease Dysautonomia IV Therapies Group Instagram We Will Rise This week has been challenging for me. I have been spiking 101 fevers daily, despite having been on antibiotics that helped until I completed the …

You awake in the middle of the night. You are nauseated and perspiring with your head bent over the toilet. Hours later, you return to your bed …

My husband, parents, and I took an out of state trip for my multvisceral transplant evaluation. We stayed in a lavish, two-story house smack dab in …