AHC.is – Heimasíða AHC samtakanna
ahckids
Асоциация „Алтернираща хeмиплегия в детството“
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Close About Us About Us Having a child with a life threatening disorder is always terrifying but living with AHC is even worse. According to the scientists who found the cause of AHC these children should be able to have a treatment for their condition to stop the deadly attacks that can happen at any given time. Why is there no treatment?
The reason is the high cost of drug reserach and development. Pharmaceutical compa nies are not interested in producing a drug for a few thousand people because they do not see a profit.
The AHC parent organizations are struggling to raise funds and it really is a race against time. During the making of this film we lost 6 children because of the disease. In the film, we take a sneak peek into the life of Sunna Valdis, who is a wonderful little girl that lives with her family in Iceland. The documentary gives an excellent insight into the difficulties that they have to endure on a daily basis.
AHC.is – Heimasíða AHC samtakanna
ahckids
Асоциация „Алтернираща хeмиплегия в детството“
Home