improvinglifewithcf.org - Improving Life with CF – Improving Life with CF: A Primary Palliative Care Partnership

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Locate resources related to project development and implementation at your site. \n Access our Event Calendar, which lists information for our Advisory Board meetings, the North American Cystic Fibrosis Conference, and upcoming project milestones. Our Deliverables page contains our implementation grid and conference presentations for the project. \n The Discussion Board is a forum where our Advisory Board members, Site Leads, and others can share feedback related to preparation and implementation of the mod

The current project has developed a primary palliative care intervention for CF care teams through an innovative and sustained collaboration among MGH, the MJHS Institute, and a consortium of four different CF Centers. Through this collaboration, CF care teams have created and have access to effective screening and care provision workflows, best practice guides for common problems among individuals with CF, a multifaceted educational program focused on best practices in palliative care, and a quality improv

The MJHS Institute for Innovation in Palliative Care was established in 2014 by the New York-based, not-for-profit Metropolitan Jewish Health System. Closely aligned with a large clinical organization, MJHS Hospice and Palliative Care, the MJHS Institute’s mission is to advance specialist palliative care through professional education and research. Its multidisciplinary faculty oversees interprofessional on-site training programs and a robust online education resource. The Institute’s research is focused on