AEFA-KBK
Kabuki Syndrome Foundation: Driving Kabuki Syndrome Research
Description: Kabuki Count is the Global Kabuki Syndrome Census. If you have Kabuki syndrome or are a caregiver for someone with Kabuki syndrome, join Kabuki Count today!
Make a difference today and show the strength of our global community. STRENGTH IN NUMBERS Kabuki Count is the fastest way to show our potential partners the number of families they can impact.
The more individuals with Kabuki syndrome we can document, the more attractive our rare disease becomes to pharmaceutical companies, biotech firms, research institutions, clinicians, government funding, and donors — all of whom we need to move treatments forward!
We are proud to be a worldwide network of families and organizations interested in helping people with Kabuki syndrome live their best lives.
AEFA-KBK
Kabuki Syndrome Foundation: Driving Kabuki Syndrome Research