mfoms.org - Many Faces of Moebius Syndrome / MFOMS

Description: Founded in 2009, The Many Faces of Moebius Syndrome (MFOMS) is the largest all volunteer Moebius Syndrome organization in the world. Prior to the popularity of social media, our founder Tim Smith, Gavin Fouche, Donnie Downs, and a few others pioneered the internet and brought the online global Moebius Syndrome community together one family at a time.

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Previous Next Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes\u00a0from side to side. Most people with Moebius syndrome are born with facial paralysis, which means they cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Moebius syndrome have normal intelligence, and others should take care not to confuse their lack of faci

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Hi it\u2019s a real privilege to be part of the mfoms ambassador group, the privilege of wearing these uniforms is fantastic they are eye catching and unique (can\u2019t wait to wear it!!) we are all proud and excited to fly the flag for this great cause\u2026. Bob EmoryAdult with Moebius Syndrome Ever since I learned that there was a website dedicated too educating the public about Moebius Syndrome I have followed that site. I have learned so much on a syndrome that my grandson, Christopher has to live wit

Links to mfoms.org (4)