Description: Project Alive was founded with the purpose of finding a cure for Hunter syndrome.
WE BELIEVE
Project Alive was founded with the purpose of finding a cure for Hunter syndrome. This is still our primary mission, but we also realize that a cure can come in many forms. That is why it is so important to continue to research and fund promising treatments. And we can never let up with our advocacy until every boy with Hunter syndrome receives the best care available and every child born with this disease can grow up.
Hunter syndrome is a rare genetic disease that is progressively debilitating, life-limiting and without a cure. It occurs almost exclusively in males and currently affects approximately 500 boys in the U.S. and less than 2,000 worldwide.