SSNEU - Save Sight Now Europe
Ava’s Voice – One Community, One Mission, One Voice.
Memories for Rebecca | "She is fearless and wild, stubborn yet silly, determined and smart, and we are in awe of her braveness.
Description: Bridging the gap between researchers and the Usher community. The USH Trust is the largest international contact database of individuals with Usher syndrome.
Welcome to our new one-stop signup! When you identify your connection with the Usher community, you’ll be able to choose how you want to stay connected:
The USH Trust is the largest international contact database of individuals with Usher syndrome. It is our most powerful tool to connect and inform individuals living with Usher worldwide.
YOU are the expert living with Usher syndrome. You’ve told us you want to learn more about Usher. You want to meet others who are the same age, or live near you, or have the same type of USH . And many of you are seeking treatments that will stop or reverse the progression of vision loss, hearing loss, and/or balance issues.
SSNEU - Save Sight Now Europe
Ava’s Voice – One Community, One Mission, One Voice.
Memories for Rebecca | "She is fearless and wild, stubborn yet silly, determined and smart, and we are in awe of her braveness.